Stephanie Tubbs Jones Uterine Fibroid Research and Education Act 2021

The White Dress Project’s Statement Applauding the ‘Stephanie Tubbs Jones Uterine Fibroid Research and Education Act of 2021’

Legislation would provide $150M to the National Institutes of Health for critical research into uterine fibroids, which affect 80% of Black women by the age of 50.

 

ATLANTA – Tanika Gray Valbrun, founder of The White Dress Project, a patient-led advocacy organization dedicated to uterine fibroids awareness, issued the following statement today after Congresswoman Yvette D. Clarke (NY-9) announced the introduction of the Stephanie Tubbs Jones Uterine Fibroid Research and Education Act of 2021. This important legislation would among other things, allocate critical research funding to the National Institutes of Health, create a uterine fibroids public education program through the Centers for Disease Control and Prention, and improve data collection on which groups are affected by uterine fibroids.

 

"The introduction of the Stephanie Tubbs Jones Uterine Fibroid Research and Education Act of 2021 is a monumental step in the movement towards uterine fibroid research to uncover much-needed answers for people managing life with uterine fibroids. We are thrilled and grateful to Congresswoman Clarke for her actions and commitment to ensuring uterine fibroids research is a priority,” Valbrun said. “As a community of patients and caregivers, The White Dress Project is committed to doing everything we can to ensure lawmakers understand how important these research dollars are. We live with the reality of a condition that comes with more questions than answers. Our stories, our experience, and our voice matters.”


No more suffering in silence!

The uterine fibroid bill would:

  • Put $30 million a year from 2021 to 2025 into the coffers of the National Institutes of Health to expand uterine fibroids research.

  • Create a uterine fibroids public education program through the Centers for Disease Control and Prevention

  • Improve data collection on which groups are affected by uterine fibroids.

  • Direct the Health Resources and Services Administration (HRSA), in consultation with medical societies, to develop and disseminate information regarding uterine fibroids to health care providers, including the elevated risk for women of color to develop uterine fibroids and the available treatment options.

Our work is not over; we'll be talking with the office of Congresswoman Yvette Clarke on the next steps to move this bill forward.

 

Call or write your member of Congress to co-sponsor The Stephanie Tubbs Jones Uterine Fibroid Research and Education Act 2021.

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